April 26, 2012

A Tough Life

Does Diabetes equal a tough life?  The following is a conversation with Jaxson on the way to school this morning:

Jaxson: Mom, my teacher read my Rufus book to my class today.
Me: That's so cool Jax! Did your friends have lots of questions about diabetes and your Rufus bear?
Jaxson: Yes. Ms. W said I have a tough life.
Me: (after a moment of contemplation) Do you think you have a tough life??
Jaxson: My pancreas doesn't work. I just want it to start working again and I'm tired of checking my blood sugar all the time. Will there be a cure soon, Mom?
Me: It's getting closer and closer every day. 

It would have been so nice to have been present for this moment in Jaxson's classroom. I'd make sure they knew that while controlling diabetes is a lot of hard work, it certainly does not equal a "tough life". The last thing I want is for his classmates and teachers feeling sorry for him. He wants so much to be treated like a normal boy, and I work hard making sure he knows that he is! 

If there's anything tough about Jaxson's life with T1D, it would be the part where we try to correct the misinformation and misconceptions that people have about those living with T1D. 

April 18, 2012

Long Time, No Me

I've been missing from the DOC scene for quite some time. Between flood, moving, new schools, new nurses, new job, foreclosure, moving again, another new school, another new nurse all the while managing highs, lows ER visits and everything in between I simply haven't had the time I'd like to devote to blogging here. I do feel that I've become disconnected, but have hopes that that will only be temporary. Some how, some way. everything should fall into place... right?

So as if I'm not bogged down enough, I've started organizing Team Jaxson for this year's JDRF Walk. We've participated before, but never headed up our own team. I feel like I have no idea what I'm doing so I'm taking to my blog to ask for your knowledge, expertise and advise. Any suggestions on obtaining sponsors, creating and purchasing shirts and anything else you feel I may be missing. 

I know I've been MIA, but I would be very grateful for your help. 

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